Wednesday, December 31, 2008

Happy New Year...2008 has been good!

Hi Friends,
It's New Year's Eve and we just finished a great turkey torita soup without the toritas. We will spend a quiet evening playing a game or watching a movie with the kids and end the year thanking God for 2008. We have been so blessed this year. I am healthy and back to ministry full time. The kids are doing great in school and we are growing together. Gabriela seems happy and spiritual focused - connecting with women here. We have a huge support system of friends praying for us, investing time in our kids, and have hope in the next steps of prevention.

The Stanford Doc called and spoke with Gabriela last week. After our visit he contacted the lab that did my chromosome testing and then met with the oncology staff discussing my case. Their findings where inconclusive. They couldn't tell why my chromosome 15 was missing on some of my cells. They did not think it was connected to the leukemia or an indication of a pending relapse. They denied that any previous treatment could have caused it and recommended that I continue chemo where I left off. I don't know what to think about this, but prayerful that they are right about it not being an indication of a relapse - even though this chromosome has been linked to acute leukemia. I finish up my naturopathic treatment this week and will be tested next week to see if the frequency treatments show an improvement in my immune system. It's really an amazing science. I can also test some other alternative medicines using this frequency treatment to see if they would have a beneficial effect on my immune system. This way I am not using products that don't specifically work in my body. The way it works is that every disease, medication, and substance as a frequency. So by creating a substance's frequency and directing it into your body, it as if you are taking that substance. We found seven substances out of 30 that are used for leukemia, that responded positive in my system. So bi-weekly I have been receiving these frequencies. The goal is to see if these substances will keep my immune system at peak fighting force. The body was designed to fight cancers, so the hope is that my immune system will detect the cancerous cells and kill them before they can multiple. What I am not clear about is because Leukemia is a white blood cell, can healthy white cells detect that it's cancer and kill it - and can they do it fast enough to prevent the Leukemia to over take the blood system. I'm still trying to get a clear answer, but no doctor has been able to affirm this either way. If you know anything about this, please let me know.

As a dear friend Monica wrote,"Our trust is in God" and everyday He gives each of us life, whether we have cancer or not. I know that He is good and I can trust Him regardless of what awaits my family in 2009. He has loved us well through many of you in 2008. Thank you and His blessing to you and your families. Kelly

Wednesday, December 17, 2008

Stanford was a flop...

Hello
Gabriela and I headed to Stanford on Tuesday as recommended by our Oncologist. The question was if our chromosome 15 issue was an indication of a pending relapse and if Stanford would recommend a Bone Marrow Transplant at this time. My question was more about understanding the chromosome 15 issue. To make this short, the doctor said it wasn't an indication of a relapse and he would not recommend a transplant at this time with my history of Mucor.

The reason the visit was a flop in my option is that the doctor didn't have my test results and after I gave them to his medical assistant, he still hadn't read it. I had to point out information that led him to need to do a further investigation and get back to us. Gabriela asked about alternative protocols and trials. Specifically we ask about the German study using Methadone on ALL. He never heard of that study. Our local news station highlighted the story. Why didn't this doctor - an expert on Leukemia not know something that is huge in possible future treatments? I wasn't impressed and at that point felt we were talking to another narrow focused doctor that treats only with chemo and radiation with no real knowledge of other protocols. It's sad that doctors aren't more rounded. They are directing people's lives. The psalmist warns us not to trust in men, but that our trust must only be in the Lord God.

Our next step is a geneticist to address the chromosome issue. I really want to understand this before we take any action. Please continue to pray for us. It's hard to have a "specialist" tell us we need to return to chemo. We don't believe that is the right step presently, but there is always that sense that we may be wrong. We are at peace regardless, but always questioning. I know less than the doctors and they know less than I need them to know. Anyway, thank you.

We are considering a home purchase and working with a great Realtor. The market is right with the housing bottom pretty close. Interest rates are very low. It's been nice to be free from a mortgage, but having a home would be great for our family to really settle down.

Would love to hear from you. We are not having anyone commenting to the blog, so I don't know who is out there. Would love to know how to pray for you.

His blessings,

Kelly

Saturday, December 13, 2008

Something Unexpected...


Hi Friends,
I met with Dr. Pascuzzo to find out the results of my biopsy last Monday. I had fully expected to be in remission and I am, but there was something unexpected. The biopsy testing includes a chromosome analysis. In the past this always was clear. My Leukemia was a T-cell type, not chromozonal. Well, some of my cells had abnormal chromosomes. Chromosome 15 was deleted in 8 out of 20 cells. This particular chromosome has been linked to leukemia. The Doctor wasn't sure why this has occurred but suggested that it could be an indication that a relapse was ahead. The report emphasizes that this deletion of Chromosome 15 is not an indictation of a relapse, but that it should be monitored.

My doctor recommended visiting Stanford again to get their opinion on this and if they would recommend a bone marrow transplant at this time while I am in remission. You can't be transplanted if you have active cancer. So I have an appointment this Tuesday to get their thoughts on this new development. After reading the report, I sense the analysis to be more positive - that my bone marrow is in excellent shape and that the chromosome issue is just something to watch. I do think that my doctor knows that we have loss confidence in Western Oncology and are researching other treatment protocols. I think that might be the reason to recommend a second option from Stanford.

Brianna turned 6 years old today and has lost her two upper front teeth. We had 15 girls over today and Brianna had a great time. They grow up so quickly. The rest of the family is doing well and getting ready for Christmas.

From the Rosenthal Family, we wish you His best and that you will know His love in deeper ways through the holidays. Merry Christmas!!

Kelly and the Rosenthals